Research registries and databases

ENT prospective international cohort for people with Primary Ciliary Dyskinesia (EPIC-PCD) – Myrofora Goutaki

International Primary Ciliary Dyskinesia Cohort (iPCD) – Myrofora Goutaki

Surveillance of Newborn Screening for Cystic Fibrosis in Switzerland – Claudia Kuehni

Swiss Cerebral Palsy Registry (Swiss-CP-Reg) – Anne Tscherter

Swiss Growth Registry (SGR) – Grit Sommer

Swiss Paediatric Asthma Cohort (SPAC) – Eva Pedersen

Swiss Pediatric Inflammatory Brain Disease Registry (Swiss-Ped-IBrainD) – Lorena Hulliger

Swiss Paediatric Renal Registry (SPRR) – Claudia Kuehni

SwissPedRegistry – Claudia Kuehni

Swiss Primary Ciliary Dyskinesia Registry (SPCDR) – Myrofora Goutaki

Swiss Rare Disease Registry (SRDR) – Cheryl von Arx

Swiss Registry for Neuromuscular Disorders (Swiss-Reg-NMD) – Andrea Mathis, Anne Tscherter

Institute of Social and Preventive Medicine (ISPM)